About Me

Living life with a chronic illness is a lonely experience. No doubt about it. But that doesn't necessarily mean that it has to be experienced alone. When Clary was first diagnosed with Hypermobile Ehlers-Danlos Syndrome, the first of her various conditions, we had no idea what was in store – for either of us. But we did know that whatever came our way, we would walk the walk together. Nearly three years and multiple diagnoses later, we are doing so many things we never thought possible and that we never saw coming. We both have experienced loss and grief, pain and frustration, sleepless nights and nap-filled days. We have celebrated new friendships and mourned lost ones. We relate to one another in ways that no one else understands, and share gallows humor that no one else finds funny. We have learned the ins and outs of conditions of which we previously had never heard, and learned to speak with experts using language we would not have understood a short time ago. We have done it together, with heaps of laughter, plenty of arguments, a dash of annoyance and a sprinkling of tears. 

Make no mistake: this is her story. It's just my point of view. Thanks for joining us on our journey. We are glad you're here.

Debbie and Clary